Every Metabolic Disorder Child Deserves a Chance
"At Hope for Children, we believe every child deserves protection, education, and the chance to dream. Join us in our mission to create a world where no child is left behind."
About Our MissionHelping is Great Virtue for Every Human’s
The Inherited Metabolic & Rare Disorders Welfare Foundation (IMPDWF) is a community of parents, doctors, and volunteers who came together for one mission: to ensure that children born with metabolic disorders are not forgotten. What makes us unique is that we are powered entirely by volunteers. Many of us are parents who lost children to these rare conditions, and we now dedicate our lives to saving others.
Our Journey
The establishment of IMDPWF was a direct response to a healthcare emergency. Our journey is defined by rapid scale-up, powerful advocacy, and success in bringing the IMD crisis into the national spotlight, forcing public recognition and policy engagement.
A Timeline of Impact
National Media Spotlight, Press Drives, and Mindset Change
IMDPWF has strategically utilized press conferences and nationwide media coverage to shatter the silence surrounding IMDs and enforce a societal shift in understanding.
Mass Awareness Campaigns
We leverage major national media channels to broadcast the realities of living with IMDs. This extensive coverage put pressure on policymakers and served as a countrywide educational drive.
High-Level Government Engagement
Our direct physical advocacy drives, including meetings with high-ranking government officials such as the Prime Minister and relevant ministers, have been instrumental in presenting the patients' plight.
JDC Foundation Collaboration
Our mission received a significant boost through the vocal and powerful support of philanthropic leaders, notably Mr. Zafar Abbas (JDC Foundation), amplifying the urgency of the IMD issue.
Media Coverage & Campaign Videos
Watch our impactful media appearances and awareness campaigns that helped bring the IMD crisis to national attention
Resulting Policy Engagement
The visibility achieved through our media efforts and high-profile advocacy has opened doors to essential high-level policy discussions.
To save and improve the lives of children with inherited metabolic disorders by providing nutritional lifelines, raising awareness, and supporting families through guidance, treatment, and community care.
We envision a Pakistan where every newborn has access to early metabolic screening, every child receives the necessary treatment and specialized nutrition regardless of their family's income,.
We lead with compassion, operate with transparency, and are driven by volunteer dedication—all focused on delivering life-saving impact. Guided by compassion and transparency, our dedicated volunteers work with one goal
Our Aims and Objectives
We are committed to improving the lives of individuals and families affected by Inherited Metabolic Disorders (IMDs) through care, research, advocacy, and community support. Our goals reflect our mission to create a healthier, informed, and inclusive future for all.
To establish, support, and manage care centers, clinics, diagnostic labs, and rehabilitation facilities dedicated to the diagnosis, treatment, and long-term management of inherited metabolic disorders (IMDs) in urban, rural, and remote areas.
To promote awareness about IMDs through campaigns, workshops, and digital platforms, educating the public, healthcare professionals, and policymakers about early diagnosis, genetic counseling, and preventive measures.
To facilitate research into IMDs by collaborating with medical institutions, universities, and research organizations, and to fund studies on novel therapies, dietary management, and gene-based treatments.
To provide financial assistance, subsidized treatments, nutritional supplements, and medical equipment to individuals and families affected by IMDs, prioritizing marginalized and economically disadvantaged groups.
To collaborate with governments, international agencies, and NGOs to advocate for policies that improve access to newborn screening programs, specialized healthcare, and affordable orphan drugs for IMD patients.
To organize conferences, training programs, and skill-building workshops for healthcare professionals, caregivers, and patients to enhance knowledge about IMD management and psychosocial support.
To publish educational materials, guidelines, and multilingual resources (print, digital, and audiovisual) on IMDs for patients, families, and medical practitioners.
To establish a national registry of IMD patients to track epidemiological data, improve care coordination, and advance evidence-based policymaking.
To create support groups, helplines, and counseling services for patients and families to address emotional, social, and financial challenges associated with IMDs.
To raise funds through grants, donations, CSR partnerships, and fundraising events to sustain the organization’s initiatives and expand its reach.
To collaborate with genetic testing labs, biobanks, and research institutions to improve access to advanced diagnostic tools and personalized medicine for IMD patients.
To advocate for the inclusion of IMDs in national health programs, insurance schemes, and disability rights frameworks to ensure equitable care.
To engage in international partnerships for knowledge-sharing, capacity-building, and advocacy on rare metabolic disorders.
To undertake any other activities incidental or conducive to the above objectives, as permitted under applicable laws governing non-profit organizations.
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Become a Volunteer? Join With Our Team
At the heart of IMPDWF lies a profound belief in the power of community. Our foundation is powered entirely by a network of dedicated volunteers—from medical professionals to compassionate local advocates—who selflessly contribute their time, unique skills, and personal resources. This collective spirit of service is our greatest strength, ensuring that no child battling a metabolic disorder is ever left to face their challenges alone or without the essential treatment they need to survive and thrive.